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U2FP's Blog > Keeping you current on the movement to cure paralysis

Breakout Session at U2FP's Annual Symposium

Person in wheelchair sitting around a table with other people

U2FP's Annual Symposium offers a wonderful opportunity to listen to one another, and then share your experience and thoughts on SCI research strategies. This exchange is key to aligning our goals and priorities. 

Register Now!

As we do every year, we hope to provoke some rich discussions around themes we believe are important to the community. We will host a breakout session Saturday afternoon on three main discussion points:

1. Risk/Benefit Discussion

  • What would you risk in receiving a procedure, treatment, surgery to regain functions lost to paralysis?
  • How do you assess and prioritize functional gains? Ie, bowel / bladder, hand, sexual function, movement, pain, etc.
  • Right To Try: do you know about the Right To Try? What is it? When is it appropriate? When not?
  • When is a therapy ready to try? When is it ‘good enough’?

2. SCI Community and Research Partnerships

  • What does being involved in research look like? How does it work?
  • We will have folks in the room who have experiences to share from the community side and the research side.
  • Listen to our recent podcast interview with Dr. Kim Anderson to get a little background on the importance of including lived experience in research.

3. Advocacy Opportunities

  • What can I do? There are roles for SCI folk, researchers, clinicians, and caregivers.
  • We will discuss some of the ways to get involved in a variety of advocacy efforts, both locally and nationally.
  • We will share stories, examples and some resources that will motivate you to become more involved.

Our symposium provides a unique opportunity to have meaningful conversations with all stakeholders interested in delivering curative/restorative treatments aimed at improving the quality of life for people living with paralysis.

But to have a voice, you need to show up and speak up.

Join us!

PS - Don’t forget: our Early Bird discount expires tomorrow, Friday September 8th. This is your last chance to save nearly 30% off your registration to U2FP’s 18th Annual Science & Advocacy Symposium. Register Now!