Learn about advocacy opportunities and educate yourself about spinal cord injury and the science that is working to improve functional recovery.
Search these online databases to find clinical trials you may be interested in. Both resources are supported by U2FP and a number of other SCI organizations.
National Institutes of Health - Spinal Cord Injury Resources
The National Institute of Neurological Disorders and Stroke (NINDS) conducts spinal cord research in its laboratories at the National Institutes of Health (NIH) and also supports additional research through grants to major research institutions across the country. Advances in research are giving doctors and patients hope that repairing injured spinal cords is a reachable goal. Advances in basic research are also being matched by progress in clinical research, especially in understanding the kinds of physical rehabilitation that work best to restore function. Some of the more promising rehabilitation techniques are helping spinal cord injury patients become more mobile.
Information from the National Library of Medicine’s MedlinePlus: Spinal Cord Injuries
The National Institute of Neurological Disorders and Stroke (NINDS) and other Federal agencies and international organizations have the common mission of developing data standards for clinical research. Through the efforts of subject-specific working groups, topic-driven data elements have been created. The first set of Common Data Elements (CDEs) for Spinal Cord Injury was developed in 2014. Pediatric SCI CDE recommendations were developed in 2015, supplementing the existing adult recommendations. The Core data elements to be used by an investigator when beginning a research study in this disease/disorder are listed in ...