Resources

Annual Reports

View and download U2FP's Annual Report from this year or past years.


Clinical Trials Charts

Click on one of the Clinical Trials below to download a pdf version of your preferred chart. This information is compiled for the benefit of the spinal cord injury community and is updated regularly.

Unite 2 Fight Paralysis does not imply or infer an endorsement or recommendation of the research mentioned here. Questions and comments are welcome at trials@u2fp.org (last updated 4/30/2019)


National Spinal Cord Injury Statistical Center (NSCISC)

  • This downloadable data sheet is a quick reference on demographics and the use of services by people with spinal cord injury in the United States. The National Spinal Cord Injury Database is a prospective longitudinal multicenter study that currently captures data from an estimated 6% of new SCI cases in the United States. The database has demographic and condition status data through 2017 for 32,727 people with SCI.

    National SCI Statistical Center
    515 Spain Rehabilitation Center
    1717 6th Avenue South
    Birmingham, AL 35233-7330

    For Statistics: 205-934-3342
    For Business: 205-934-3320
    TDD: 205-934-4642
    FAX: 205-934-2709
    E-mail: NSCISC@uab.edu
    Website: uab.edu/NSCISC


National Institutes of Health - Spinal Cord Injury Resources

  • The National Institute of Neurological Disorders and Stroke (NINDS) conducts spinal cord research in its laboratories at the National Institutes of Health (NIH) and also supports additional research through grants to major research institutions across the country. Advances in research are giving doctors and patients hope that repairing injured spinal cords is a reachable goal. Advances in basic research are also being matched by progress in clinical research, especially in understanding the kinds of physical rehabilitation that work best to restore function. Some of the more promising rehabilitation techniques are helping spinal cord injury patients become more mobile.
    Information from the National Library of Medicine’s MedlinePlus: Spinal Cord Injuries

  • The NIH Clinical Trials and You website is a resource for people who want to learn more about clinical trials. By expanding the below questions, you can read answers to common questions about taking part in a clinical trial.
    Read More

  • The National Institute of Neurological Disorders and Stroke (NINDS) and other Federal agencies and international organizations have the common mission of developing data standards for clinical research. Through the efforts of subject-specific working groups, topic-driven data elements have been created. The first set of Common Data Elements (CDEs) for Spinal Cord Injury was developed in 2014. Pediatric SCI CDE recommendations were developed in 2015, supplementing the existing adult recommendations. The Core data elements to be used by an investigator when beginning a research study in this disease/disorder are listed in ...
    Read More

  • This page on the NIH website provides a brief summary of some basic questions and history related to spinal cord injury such as, How Does the Spinal Cord Work, What Immediate Treatments are Available, and How Can I Help With Research among many others.
    Read More

Grants & Opportunities

Peruse relevant grant options as well as other opportunities available to the spinal cord injury (SCI) community.

  • The Craig H. Neilsen Foundation is pleased to announce its 2020 Creating Opportunity & Independence (CO&I) funding opportunity for qualifying nonprofit
    organizations that strive to improve the quality of life for individuals living with or affected by spinal cord injury (SCI).

    The Neilsen Foundation’s new Community Support Grants replace Project Grants as CO&I’s one-year funding opportunity, with grants ranging from $25,000 - $100,000.
    Community Support Grants comprise diverse efforts that fulfill the goals of the CO&I portfolio: to support organizations that provide programs and services that enhance
    quality of life for individuals and families living with SCI. The six topic areas are: Arts, Sports and Recreation, Assistive Technology, Education, Employment, Independent
    Living and Rehabilitation.

    The Community Support Grants application process begins with submission of a Letter of Intent (LOI), which will open in proposalCENTRAL (https://proposalcentral.altum.com) on Wednesday, November 20, 2019. The 2020 Application Guide and deadline information are available now on our website (www.chnfoundation.org). Contact Jane Otto, Program Officer, at jane@chnfoundation.org for further information.

    ABOUT THE CRAIG H. NEILSEN FOUNDATION
    The Craig H. Neilsen Foundation was established as a private foundation in 2002. The Neilsen Foundation is the largest private funder of spinal cord injury (SCI) research,
    rehabilitation, clinical training and programming in the United States. The Neilsen Foundation funds scientific research (preclinical, translational, clinical and psychosocial
    research); opportunity and independence programs; scholarships for students with SCI; postdoctoral and SCI medicine fellowships; and other projects to support the SCI
    community throughout the United States and Canada.
    For more information, please visit: www.chnfoundation.org.