Resources

Clinical Trials Charts

Click on one of the Clinical Trials below to download a pdf version of your preferred chart. This information is compiled for the benefit of the spinal cord injury community and is updated regularly.

Unite 2 Fight Paralysis does not imply or infer an endorsement or recommendation of the research mentioned here. Questions and comments are welcome at trials@u2fp.org (last updated 6/21/2018)


National Spinal Cord Injury Statistical Center (NSCISC)

  • This downloadable data sheet is a quick reference on demographics and the use of services by people with spinal cord injury in the United States. The National Spinal Cord Injury Database is a prospective longitudinal multicenter study that currently captures data from an estimated 6% of new SCI cases in the United States. The database has demographic and condition status data through 2017 for 32,727 people with SCI.

    National SCI Statistical Center
    515 Spain Rehabilitation Center
    1717 6th Avenue South
    Birmingham, AL 35233-7330

    For Statistics: 205-934-3342
    For Business: 205-934-3320
    TDD: 205-934-4642
    FAX: 205-934-2709
    E-mail: NSCISC@uab.edu
    Website: uab.edu/NSCISC


National Institutes of Health - Spinal Cord Injury Resources

  • The National Institute of Neurological Disorders and Stroke (NINDS) conducts spinal cord research in its laboratories at the National Institutes of Health (NIH) and also supports additional research through grants to major research institutions across the country. Advances in research are giving doctors and patients hope that repairing injured spinal cords is a reachable goal. Advances in basic research are also being matched by progress in clinical research, especially in understanding the kinds of physical rehabilitation that work best to restore function. Some of the more promising rehabilitation techniques are helping spinal cord injury patients become more mobile.
    Information from the National Library of Medicine’s MedlinePlus: Spinal Cord Injuries

  • The NIH Clinical Trials and You website is a resource for people who want to learn more about clinical trials. By expanding the below questions, you can read answers to common questions about taking part in a clinical trial.
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  • The National Institute of Neurological Disorders and Stroke (NINDS) and other Federal agencies and international organizations have the common mission of developing data standards for clinical research. Through the efforts of subject-specific working groups, topic-driven data elements have been created. The first set of Common Data Elements (CDEs) for Spinal Cord Injury was developed in 2014. Pediatric SCI CDE recommendations were developed in 2015, supplementing the existing adult recommendations. The Core data elements to be used by an investigator when beginning a research study in this disease/disorder are listed in ...
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  • This page on the NIH website provides a brief summary of some basic questions and history related to spinal cord injury such as, How Does the Spinal Cord Work, What Immediate Treatments are Available, and How Can I Help With Research among many others.
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