View and download U2FP's Annual Report from this year or past years.
Grants & Opportunities
Peruse relevant grant options as well as other opportunities available to the spinal cord injury (SCI) community.
12/15/2020 - The Craig H. Neilsen Foundation is pleased to announce its 2021 Creating Opportunity & Independence (CO&I) funding opportunity for qualifying nonprofit organizations that strive to improve the quality of life for individuals living with spinal cord injury (SCI).
Neilsen Foundation’s Community Support Grants can be requested for one or two years. The funding objectives include: promoting community integration, participation and independence for individuals living with SCI; removing barriers and fostering access; promoting health and wellness in rehabilitation, through transitional stages, and in the community; addressing regional needs; and encouraging self-efficacy. The six topic areas are: Arts, Sports and Recreation; Assistive Technology; Education; Employment; Independent Living; and Rehabilitation.
The application process begins with submission of a Letter of Intent (LOI), which will open in ProposalCentral (https://proposalcentral.com) on Monday, January 4, 2021. The deadline for LOI applications is February 1, 2021; the Application Guide is available here or on the Neilsen website (www.chnfoundation.org/how-to-apply/).
ABOUT THE CRAIG H. NEILSEN FOUNDATION
The Craig H. Neilsen Foundation is the largest private funder of spinal cord injury research, rehabilitation, clinical training, and programmatic support in the United States and Canada. The Foundation partners with scientific, charitable, and educational organizations conducting spinal cord injury research, training in spinal cord medicine, and supports grassroots organizations providing services to assist individuals affected by spinal cord injury. The Neilsen Foundation values diversity, equity, and inclusion and is dedicated to a future where individuals with spinal cord injuries live full and productive lives as active participants in their communities.
Cure Advocacy Network
Find relevant information from current and past Cure Advocacy Network campaigns in various states.
Click the image or heading to download.
Citations for information referenced in this document can be found here:
1) Estimates of Funding for Various Research, Condition, and Disease Categories (RCDC)
2) Spinal Cord Injury Facts and Figures at a Glance
3) Living with Paralysis
4) Speaker pro Tem Introduces AB 214 - Renewing State Funding for Roman Reed Spinal Cord Injury Research Act
5) Spinal Cord Injury and Traumatic Brain Injury Research Grant Program
Search these online databases to find clinical trials you may be interested in. Both resources are supported by U2FP and a number of other SCI organizations.
National Spinal Cord Injury Statistical Center (NSCISC)
This downloadable data sheet is a quick reference on demographics and the use of services by people with spinal cord injury in the United States. The National Spinal Cord Injury Database is a prospective longitudinal multicenter study that currently captures data from an estimated 6% of new SCI cases in the United States. The database has demographic and condition status data through 2017 for 32,727 people with SCI.
National SCI Statistical Center
515 Spain Rehabilitation Center
1717 6th Avenue South
Birmingham, AL 35233-7330
For Statistics: 205-934-3342
For Business: 205-934-3320
National Institutes of Health - Spinal Cord Injury Resources
The National Institute of Neurological Disorders and Stroke (NINDS) conducts spinal cord research in its laboratories at the National Institutes of Health (NIH) and also supports additional research through grants to major research institutions across the country. Advances in research are giving doctors and patients hope that repairing injured spinal cords is a reachable goal. Advances in basic research are also being matched by progress in clinical research, especially in understanding the kinds of physical rehabilitation that work best to restore function. Some of the more promising rehabilitation techniques are helping spinal cord injury patients become more mobile.
Information from the National Library of Medicine’s MedlinePlus: Spinal Cord Injuries
The National Institute of Neurological Disorders and Stroke (NINDS) and other Federal agencies and international organizations have the common mission of developing data standards for clinical research. Through the efforts of subject-specific working groups, topic-driven data elements have been created. The first set of Common Data Elements (CDEs) for Spinal Cord Injury was developed in 2014. Pediatric SCI CDE recommendations were developed in 2015, supplementing the existing adult recommendations. The Core data elements to be used by an investigator when beginning a research study in this disease/disorder are listed in ...