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Today we are talking to Arash Bayatmakou and Dale Hull, the organizational heads of NorCal SCI and Neuroworx, respectively. NorCal SCI is a resource non-profit serving the SCI community of northern California. Neroworx is an outpatient rehabilitation center in Salt Lake City, Utah. The main focus of our discussion is the lack of access to outpatient rehabilitation after SCI and the creative collaboration these organizations have...
This is the long and winding story of a highly anticipated clinical trial happening in Australia next year. Scientists intend to transplant a 3D nerve cell bridge seeded by cells harvested from each participant’s nose directly into the lesion area of their spinal cord. The study also includes a huge amount of rehab training. Many of you have likely already seen the recent news coverage around this trial; indeed, several of our followers reached out to me about this story...
the clock is ticking. With less than 12 hours to go, we don't want to miss the opportunity to double the impact of our programs, like Lab Rats, which places people with an injury into SCI research labs as lived-experience consultants; or our CureCast Podcast, which provides interviews with SCI scientists and advocates, unpacking cure research from the SCI community's point of view; or the Cure Advocacy Network (CAN), which passes and then helps oversee state legislation that funds SCI research for functional recovery. In fact...
My grandfather's nickname was Stormy Rodreick. He was a pilot, a barnstormer, crop duster and bootlegger delivering moonshine across the Kentucky/Ohio border. I never knew him, in large part because he was illegally married to two other women at the same time he married my grandmother. But stories of who he was, and wasn’t, were formative for me. He was a rebel, criminal, liar and a womanizer. I used to wonder if...